He died on Shabbat almost three years ago. He was
the kind of man whose compassion, good humor, and commitment to Torah made him
an integral part of the community. Although we weren’t close, we considered him
one of our friends and hurried home that Saturday night in order to attend his
funeral.
Those who loved and admired him gathered outside the
yeshiva. It was cold, dark, and somewhat eerie. Most of the eulogies were what
was to be expected, praising the man and sharing touching stories about him. His
youngest son’s words, though, left me totally dumbfounded.
In a choked voice, Chaim, as I’ll call him, thanked
his father for teaching him to walk and helping him learn to run. What in
the world was the twelve-year-old talking about? Why did he need his father’s
help to walk or run?
Shilo is built on a hill and Chaim lived in the
middle neighborhood while we live on the top. He wasn’t one of the children I
saw often. He’s younger than all of the kids in my family. However, he’d
visited our Sukkah with other boys once or twice. He seemed perfectly normal to
me.
Five days later I received an answer to my
questions. At the shiva call Chaim’s mother explained that he had CP, cerebral palsy, a
neurological disorder that primarily affects body movement and muscle
coordination. I was shocked. From afar it seemed as if he could do anything the
other boys his age could do. His mother explained that wasn’t quite true. He
did have some limitations as far as hiking and other sports, but he was more or
less totally mainstreamed with the boys in his class.
I finished my shiva call
and returned home to Shabbat preparations. The next day my son, his wife, and
their three-month-old baby were coming. I was excited. My grandson had been a
premie and spent almost the first two months of his life in the hospital. This
would be among his first visits and finally we’d have some relaxed time
together. I could take him for a walk in his stroller and show him off.
They arrived a little
earlier than usual that Friday. They wanted to talk to us. Their serious
demeanor told us that it wasn’t going to be a fun conversation. The day before,
while I was at the shiva call, they were having an important meeting
with doctors. They were informed that their son had CP.
It’s never pleasant to learn
that someone whom we love is short of what we perceive as perfect. If I’d heard
that news before my conversation with Chaim’s mother I probably would have been
devastated. A quick look at the internet listed all sorts of horror stories
about children with CP who were trapped in bodies that didn’t allow for them to
communicate. I chose to ignore those stories and concentrate on Chaim’s
experiences.
With time I have discovered
that I know more people with CP who are living normal lives. Their successes keep
me optimistic about my grandson’s development. As he turns three he has already
been walking for a year and his vocabulary is growing daily. I’m thrilled when
he calls me mama, instead of grandma.
HaShem did an incredible
kindness for me by letting me first learn about CP from Chaim and not the
internet. I know His kindness never ceases. I know whatever lies ahead for my
grandson will be for the best.
7 comments:
Ester, I hope you have had a blessed holiday. I did not know that one of your grandchildren had CP. I am so glad it appears to be mild. Your post got me thinking about the Kindness of HaShem. When I was diagnosed with breast cancer, just after losing Mom then Dad only a week before, I thought HaShem had abandoned me. How wrong I was. Although I would never wish cancer on anyone, the experience taught me so much and helped make me who I am today. From hindsight, I see His Blessings. Today I work with the American Cancer Society to help all cancer patients, families, and survivors. I use my life to help others find hope. Thank you for reminding me that HaShem always knows what is right for each of us. Love, Esther
Thank G-d there is such wonderful therapy now for CP kids. G-d willing, your grandson will function well and enjoy life to his fullest.
Thank you, Esther. It's so inspiring to know you took your challenge and grew with it.
Amen, Batya
Always amazing the love & kindness that God shows us in the most perfect way. I am sure your grandson will be a blessing & inspiration for another.
Thank you, Cindy
Thank you, Cindy
Post a Comment